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Table 3 Actions toward secondary findings that predict future blindness by demographic characteristics

From: The attitude and behaviors of the different spheres of the community of the United Arab Emirates toward the clinical utility and bioethics of secondary genetic findings: a cross-sectional study

Characteristic

Action 1

Action 2

Action 3

Action 4

Action 5

Action 6

Action 7

Yes

P

Yes

P

Yes

P

Yes

P

Yes

P

Yes

P

Yes

P

n (%)

value

n (%)

value

n (%)

value

n (%)

value

n (%)

value

n (%)

value

n (%)

value

Gender

 

0.348

 

0.621

 

0.417

 

0.009

 

0.725

 

0.597

 

0.35

 Female

15 (7.0%)

 

28 (13%)

 

59 (28%)

 

73 (34%)

 

132 (62%)

 

26 (12%)

 

37 (17%)

 

 Male

10 (10%)

 

15 (15%)

 

23 (23%)

 

49 (49%)

 

59 (60%)

 

10 (10%)

 

13 (13%)

 

Employment

 

0.167

 

0.717

 

0.236

 

0.946

 

0.045

 

0.438

 

0.479

 Yes

21 (9.3%)

 

32 (14%)

 

55 (24%)

 

87 (39%)

 

130 (58%)

 

24 (11%)

 

34 (15%)

 

 No

4 (4.6%)

 

11 (13%)

 

27 (31%)

 

34 (39%)

 

61 (70%)

 

12 (14%)

 

16 (18%)

 

Occupation

 

0.774

 

0.885

 

0.1

 

0.424

 

0.274

 

0.118

 

0.006

 Health-related

11 (9.6%)

 

18 (16%)

 

35 (31%)

 

40 (35%)

 

66 (58%)

 

11 (9.6%)

 

13 (11%)

 

 Other professions

8 (8.0%)

 

13 (13%)

 

19 (19%)

 

43 (43%)

 

61 (61%)

 

10 (10%)

 

16 (16%)

 

 Students

1 (11%)

 

1 (11%)

 

1 (11%)

 

4 (44%)

 

3 (33%)

 

3 (33%)

 

5 (56%)

 

Marital status

 

0.134

 

0.65

 

0.157

 

0.306

 

0.427

 

0.232

 

0.32

 Single

6 (4.8%)

 

20 (16%)

 

39 (31%)

 

42 (34%)

 

81 (65%)

 

14 (11%)

 

22 (18%)

 

 Married

19 (11%)

 

22 (12%)

 

42 (24%)

 

75 (42%)

 

103 (58%)

 

19 (11%)

 

25 (14%)

 

 Divorced/separated/widowed

0 (0%)

 

1 (9.1%)

 

1 (9.1%)

 

5 (45%)

 

7 (64%)

 

3 (27%)

 

3 (27%)

 

Highest education

 

0.228

 

0.782

 

0.038

 

0.967

 

0.078

 

0.107

 

0.509

 Secondary or Diploma

3 (18%)

 

2 (12%)

 

5 (29%)

 

6 (35%)

 

9 (53%)

 

2 (12%)

 

4 (24%)

 

 Bachelor

12 (9.7%)

 

19 (15%)

 

41 (33%)

 

47 (38%)

 

69 (56%)

 

8 (6.5%)

 

16 (13%)

 

 Masters

7 (6.8%)

 

15 (15%)

 

26 (25%)

 

41 (40%)

 

62 (60%)

 

15 (15%)

 

17 (17%)

 

 PhD

3 (4.3%)

 

7 (10%)

 

10 (14%)

 

28 (41%)

 

51 (74%)

 

11 (16%)

 

13 (19%)

 

Nationality

 

0.287

 

0.471

 

0.076

 

0.057

 

0.455

 

0.027

 

0.010

 Emiratis

7 (12%)

 

10 (17%)

 

21 (35%)

 

17 (28%)

 

34 (57%)

 

2 (3.3%)

 

3 (5.0%)

 

 Non-Emiratis

18 (7.1%)

 

33 (13%)

 

60 (24%)

 

105 (42%)

 

156 (62%)

 

34 (13%)

 

47 (19%)

 

Insurance

 

0.706

 

 > 0.999

 

0.787

 

0.342

 

0.249

 

0.187

 

0.094

 Yes

24 (8.4%)

 

3 (12%)

 

76 (26%)

 

110 (38%)

 

173 (60%)

 

31 (11%)

 

43 (15%)

 

 No

1 (4.0%)

 

40 (14%)

 

6 (24%)

 

12 (48%)

 

18 (72%)

 

5 (20%)

 

7 (28%)

 
  1. Action 1: Ask your doctor NOT to tell you the results
  2. Action 2: Ask your doctor to tell you the result, ONLY if there is TREATMENT NOW for the blindness
  3. Action 3: Ask your doctor to tell you the result, ONLY if there is LIFESTYLE modification that you can do
  4. Action 4: Ask your doctor to tell you, because you want to inform your CAREGIVERS, so they can take actions
  5. Action 5: Ask your doctor to tell you, so YOU can make life choices, like switching jobs, fixing your home, finding a driver
  6. Action 6: Ask your doctor NOT to document this information in your file, so you do not lose your current insurance
  7. Action 7: Ask your doctor NOT to document this information in your file, so you your employer does not know
  8. Bold values indicate statistical significance
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Human Genomics

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