From: Genomics of rare genetic diseases—experiences from India
S. no. | Organizations | Websites |
---|---|---|
1 | Alzheimers and Related Disorders Society Of India (ARDSI) | |
2 | Birth Defects Registry of India | http://www.fcrf.org.in/bdri_abus.asp |
3 | Down Syndrome Federation India | |
4 | Fragile X Society–India | |
5 | Genetic Alliance | |
6 | Hemophilia Federation | |
7 | Indian Rett Syndrome Foundation | |
8 | Indian Association of Muscular Dystrophy | |
9 | Indian Prader-Willi Syndrome Association | |
10 | Indian Patients Society for Primary Immunodeficiency (IPSPI) | |
11 | Indian Organization for Rare Diseases (I-ORD) | |
12 | Indian Society for Primary Immune Deficiency | |
13 | Lysosomal Storage Disorders Support Society (LSDSS) | |
14 | Metabolic Errors and Rare Diseases (MERD) | |
15 | Muscular Dystrophy Association India | |
16 | Muscular Dystrophy Foundation India | |
17 | Muskaan (intellectually disabled) | |
18 | National Thalassemia Welfare Society | |
19 | Open Platform for Rare Diseases (OPFORD) | |
20 | Organization of Rare Disorder India (ORDI) | |
21 | Pompe Foundation | |
22 | Rare Diseases India | |
23 | Retina India | |
24 | Sjogren’s India | |
25 | Society for Hemophilia Care, India | |
26 | Thalassemics India |